News

The incredible energy of a young woman whose skin flakes off like fish scales

Listening to Nisha’s story will make us more confident in life, ourselves and appreciate healthy appearance.

When the heart speaks

When she was two weeks old, her biological parents abandoned her in an orphanage in Bengaluru, Karnataka state, southern India. No one wanted to adopt Nisha, but life suddenly smiled at her.

During a random visit to an orphanage 18 years ago, despite not knowing much about ichthyosis, Dr. Aloma Lobo and her husband decided to adopt Nisha.

At the time, the two-week-old 𝑏𝑎𝑏𝑦 girl Nisha was swaddled in a white sheet and was unlike any other 𝑏𝑎𝑏𝑦 the Aloma and his wife had ever known. The skin on Nisha’s tiny body was dry like fish scales, constantly peeling, and had no eyelids.

The orphanage manager told the couple that Nisha’s eyes were ulcerated and doctors estimated she had only 15% vision. Plaque ichthyosis is a rare skin disease affecting 1 in 600,000 people. It causes the process of shedding dead cells to not take place normally, forming scales on the skin.

Adopting more Nisha with Mrs. Aloma is not easy as she has 3 step sons and 2 adopted daughters. Taking care of Nisha is a series of hard days. Every day, Nisha is fed with a tube or spoon because her mouth is always wide open.

Recalling the early days, Aloma said when she still thought it was a miracle that Nisha survived: “She was fine during the day, but at night she cried. She had no sweat glands and no eyelids, so she had no eyelids, so she was fine. she can’t close her eyes. She sleeps with her eyes wide open .”

Nisha needs eye drops five times a day and her skin must be moisturized at all times.

Your Story page said that when she was 4 years old, Nisha had surgery to enlarge her eyelids with the skin on her arm in London – England. To Aloma, Nisha “is a beautiful girl 𝐛𝐨𝐫𝐧 from a cocoon, peacefully blooming”.

Family is like that, but the outside world is still scary to Nisha. Aloma remembers when Nisha was 4 years old, a woman spat on her. Aloma gets angry but Nisha says “that’s their attitude, not mine”. Everyone stared at Nisha, pulled their 𝘤𝘩𝘪𝘭𝘥 away when they saw her figure, stood up when she sat next to her.

There was once a man who refused to board a plane because of Nisha. However, at that time everyone present on the flight sided with her. “I look like this, but I’m a good person,” is what Nisha often tells people, Aloma told The New Indian Express.

Going to school wasn’t easy due to Nisha’s looks. The response of the schools will always be a shake of the head.

“They replied that they couldn’t accept her, even though we told her her condition was not contagious. She was a lovely 𝘤𝘩𝘪𝘭𝘥. They replied that we saw her through the eyes of her parents. , while teachers, parents, students do not,” – Ms. Aloma said. Nisha ends up going to school at Aloma’s friend’s school.

Mrs. Aloma remembers the first day of school, “nobody dared to touch her. There was a gentleman who took Nisha’s hand and led her to class. After he talked to the other 𝘤𝘩𝘪𝘭𝘥ren, they rushed to Nisha. asking questions, calling her name and comforting her “don’t worry about going to school”. Warmth spreads and that’s what the Lobo family looks for for Nisha.

Now Nisha is a confident teenager, interning at digital marketing agency Autumn Worldwide. “They warmly accept and guide her. Nisha has always been a warrior with high self-esteem” – Mrs. Aloma is still worried about the safety of her 𝘤𝘩𝘪𝘭𝘥ren when she and her husband are getting closer and closer to heaven and earth.

Nisha’s story caught the attention of many when she participated in the “Touch of care” advertising campaign of the P&G brand Vicks in 2018, telling the story of struggling with a severe illness, with the message people have changed the lives of others through the way they care. “We have to make the world around us more connected, break stereotypes and reduce stigma,” she hopes.

Related Posts

Sam Cooke: African-American Singer Known as the “King of Soul”

Samuel “Sam” Cooke was a Black American recording artist and singer-songwriter, generally considered among the greatest of all time was 𝐛𝐨𝐫𝐧 in Clarksdale, MS, on this date in…

Ella Sheppard – A Black musician, vocalist, and educator.

Ella Sheppard (February 4, 1851 – June 9, 1914) was an American soprano, pianist, composer, and arranger of spirituals. She was the matriarch of the original Fisk Jubilee…

Cynthia Lynne Cooper-Dyke – One of the greatest female basketball players ever.

Cynthia Cooper-Dyke (𝐛𝐨𝐫𝐧 April 14, 1963, Chicago, Illinois, U.S.) is an American basketball player who was the first Most Valuable Player (MVP) of the Women’s National Basketball Association (WNBA). In the WNBA’s inaugural season (1997), Cooper-Dyke led…

Juanita Moore: the Oscar nominee who fought stereotypes and racism

The Imitation of Life star was pigeonholed and undervalued by Hollywood but years later, she is finally receiving the recognition she deserves “Iwent through a hell of a…

Henry Ossian Flipper – First African American graduate of West Point

Henry Ossian Flipper, 𝐛𝐨𝐫𝐧 into slavery in Thomasville, Georgia, in 1856, becomes the first African American cadet to graduate from the United States Military Academy at West Point, New…

Carl Anthony Payne II’s Wife: Meet Melika Payne, the Woman Who Ditched Bobby Brown for the ‘Martin’ Star

Carl Anthony Payne II and his wife Melika Payne are one of Hollywood’s quietest and longest-running married couples. But their marriage has not been without bumps and controversy, including…

Leave a Reply

Your email address will not be published. Required fields are marked *